Sunday, 19 November 2023

Banish Fair: a poem



Banish Fair


It is not fair, for fair is conscious

And this is simply chance.

No emotion, no sentient being to blame

Try not to claim that you don't deserve 

This.

You don't deserve this.

Your merit is no part of this, this is

Simply statistical chance.

A roll of the dice. Now;

Banish Luck. 

For the lady is only smoke and mirrors

And she can set you down in your comfy chair, leave you

Static, cursing the gods,

The fates, the muses, the near impossible 

Odds of the national lottery and your

Rotten bad luck. 

But my word. What power you have.

What life, what love, what

Incredible, wonderful beauty is within you. 

Claim those fires.

Who then needs luck? 

Wednesday, 15 November 2023

Banish Fair


The advert about cancer keeps changing. I recall the statistic, one in three people will get cancer in their lifetime. The subtext was that they would die from the illness, and that’s powerful. But we’ll come back to that later on. I don’t watch a great deal of TV but I did see an advert for a cancer charity on catch up the other day while I was having a crime solving commercial break so that Poirot could wax his moustache and I could get another cup of something warm and comforting. It will have been hot vimto, after all, I’m a proud northerner. The new statistic is one in two people. 50% of the population. They’re good or bad odds depending on whose team you’re on. So with a coin toss chance of getting cancer at some point, this seems a pretty bleak first paragraph. However, remember that the increased number is because of a lot of factors that I’m certainly not qualified to dig into here, including that fact that our lives are largely safer now, so we’re more likely to get cancer than stuck down a mine, (northern yeah?). If half of us are going to get cancer, (not necessarily die from it), I believe one of the most powerful steps that you can take for your story, and to live well, is to banish the word “fair” from your narrative. Here’s my thinking. 


Fair breeds sulking. When I was a child, doing my best, and yet things did not go my way, I felt that the world was not being fair with me, also my parents, siblings, teachers, rounders umpire etc. I went in to bat for my team, paid attention to the bowler, and as the ball came to me, I hit it, an absolute beaut. As it soared skyward for the edge of the playing field, I knew that I’d done my best, and this should be a rounder, no question. But then, what’s this? That fielder so bored at the edge of the game that they’ve sat down, is no longer sat down, in fact, they’re running, staring up at the sky and a small sphere of stitched leather which is coming rapidly towards the ground. They catch me and I’m out. No glory, no adoration from my team for my excellent hit, just a walk back to the bench. Not fair. On another day, that would have been perfect, not carried aloft by my pals (I was an active and strapping teaenager) but definitely smiles all round. Now I am sulking. What more could I have done? Maybe nothing. Fast forward to my illness and that could become a helpless place. If I can’t do anything to ensure the fairness of this life, why bother trying? Have another pizza, eat three cakes, sit on the sofa all day, stay in my PJs. That’s today ruined now. All because it isn’t fair. It seems the easy option to do all those things, and I do love cake, but that isn’t long term sustainable without other repercussions to my life. That matters, because that is caring about living. It’s why you take out a mortgage for all of your working adult life, why you save into a pension. It’s a vital human folly to believe that things will carry on, and go well. There is no space for fair in that narrative, and I hope that’s one you can choose, or work at choosing. 


Fair encourages anger. It’s the sly kid who winds everyone up and then slinks away when the fight all kicks off. The problem with this fight is who are you going to fight? God? From my experience, and I confess that I’m agnostic if I really try and an atheist by nature, God isn’t too keen on replying when you ask him questions. Imagine now that you’re yelling at him, with all the unfairness of your life, medical situation, fact you’re single, rubbish job, whatever it is that has got your dander up. In my mind he becomes the disapproving parent, or kindly school teacher who cannot hear children who don’t have manners. So choosing God will be a very unfair fight, and one where no clear winner will appear. Who next to vent your spleen at then? The world? That’s possible, but I imagine that it can be an exhausting experience being angry at everything. There are studies into the positive effects of positivity, and you’re missing an easy win by directing your anger at the lack of fairness in the whole world. Plus people who don’t know your life will just think you’re a bit of an idiot, and potentially give you tangible things to be angry about. As our battlefield of people to have beef with is shrinking, we see the people in your life appear. Those people who you care about and who care about you. You want to fight them because of statistical chance? You get the picture. You need to assess what your main goal is. Do you want to live long, or live well? They aren't necessarily the same, but if it’s the latter, then anger will not serve you as a mainstay of your mood. 


The judge sits in the courtroom, and you are in the dock. Classically, the walls are wood panelled and there is no jury, no spectators, no lawyers, just the two of you. In this kafkaesque waking nightmare, you’re not entirely sure what crime you have commited. The judge turns to you and asks you how do you plead? What should you say? Indeed, which crime of the ones that we have all committed at some time, is the one to admit to? Are they ranked? Can you really say that you’re blameless? The judge looks over their glasses and you know that they’re waiting for an answer. The background spins and you’re on the stage of a gameshow, all 1970s bright lights and garish lettering. The audience are cheering and applauding for the excitement that is about to begin. That same judge, transformed in a shiny burgundy suit, turns to you and explains the rules of the game. You can swap places with someone else. It can be anyone you nominate, but you must do it before the timer runs out. The timer beats with the blood in your ears. The host repeats that you can swap out and someone else could be in your place. Their voice slows and deepens and distorts as you try and decide what would be the fair thing to do, because damn right you don’t want to be in this game. Fair, and I believe this could be the worst of it all, is entitled. 


Of course, nobody seeks to have angry, entitled or sulky as the adjectives that spring to mind when they are described by others, and you can choose for them to not be. That’s not all, there are other advantages to banishing fair to the very far edges of you narrative. Firstly, without “fair”, you gain space. The fair that was keeping you pinned to your sofa, comfort eating and being cross about the weight you gain, has gone. That’s one less thing to stop you from living the best life you can. Heck, you’ll want some wiggle room to avoid being crushed by a diagnosis, setback, or failure in a treatment. I’m not suggesting that I’m all smiles when I hear that my super smart cancer has super smart got its way around yet another treatment in super quick time. However, I try and prepare for the worst before I collect results, and move quickly on the day to any questions I might have about what’s next. I have also recently taken to offering my condolences to my oncologist, who’s a kind, hard working, wonderful person, and having to spend a proportion of her time telling me that what we are trying hasn’t worked is pretty rubbish. There’s not only me of course, I feel like she’s solely mine, but she has plenty of other patients with incurable cancer, and so this is a part of her job. She’s really very awesome. Removing fair means that I can be more agile, more adaptable, more flexible to look for the next good thing. There is a next good thing, I promise. 


I was told several times to try the idea of my cancer being a pet. I get it, cancer becomes a part of your persona, it’s with you all the time, and it can be hard for people to not ask about it, should you choose to be open about your illness that is. That’s obviously because they care, it’s lovely, but also tiring when everyone you meet asks you how you are. It’s exhausting when you never have any good news to give, only the weak sunshine that things aren’t worse, yet. I find holding people’s sadness for me, their wish if they’re older than me that they could give me a long life in place of their own, a difficult thing to do, but I’m getting better at it. A swiftly spoken “but today things are good, and that’s what I’m focusing on,'' usually does it enough for the situation to return to cheery. Remember the ‘pet’? It has no name, no full persona. It’s not sentient, so it cannot do things which are fair. Or unfair. It’s nothing to trouble your intellect. Are you feeling stronger? You are strong. If you can remove “fair”, you remove so much of the power in the story from cancer or any other troubles. I believe that if you remove fair from your life, you place its power, rightly, on your shoulders. You did that, you powerful, wonderful, living human, you. 


Sunday, 12 November 2023

defining success



Well then, 

I didn’t think I’d be back here, and certainly not like this. However, as many of you will already know, in September 2019, I was re-diagnosed, with secondary breast cancer, five years almost to the day from my original breast cancer diagnosis. This meant that my breast cancer had both returned, but also made its sneaky way into other parts of my body. For me, at first, this was my chest wall and my liver. This meant that my cancer was now classed as incurable, but treatable. Incurable because once cells in other areas had started malfunctioning and growing into tumours, it would be impossible to eliminate the cancer. Yes, we could have cut out a bit of my liver in 2019, but the problem would appear elsewhere now that this "malignant switch" had starting being flicked in certain cells, and we wouldn't know which it would be next. My original cell malfunction, which caused the cancer, you'll recall, was in my breast tissue. So all my tumours are breast cancer, wherever they appear in my body. I don't have liver cancer now, but breast cancer, in my liver.  

It’s almost impossible to accurately describe how the moment that I heard this news felt, but my best attempt to try is to tell you that upon being told, I was incredulous, and then sobbing, and then imploring my lovely surgeon with my eyes to tell me this wasn’t true. That I wasn’t unfixable this time round. My stomach dropped as his eyes welled and he told me that he was sorry. Then it was explained to me that my treatment would be done by the oncology team at The Christie now. My cancer could be treated there, managed but never got rid of. This had become a condition that I could live with. In time, in my head I imagined it to be more like diabetes. But with a much worse life expectancy. In that initial moment however, my world collapsed; tumbled down in flames around me, and every other cliche you've heard, because they're often true.

The flames abated, the big machine started working, and I found my place within the cogs once more, whilst continuing working for a very short period of time. Then I retired from teaching. Then someone asked me if I was going to do any writing. Then another person asked me the same question. Then someone else said that I should write a book. I felt more than a little lost as to how to reply, as I was very unsure what I would say that hadn’t already been said. What could I write that was worthy of being read?

I was unsure of whether I wanted to spend my remaining days tapping away on the laptop keys. Writing has always been important to me, but not my only creative output. I make music, I make things. I type words sometimes. 

I did not start writing.

Approximately 18 months ago, I had something of a breakthrough, as I realised that I could create something with words, which would encompass the breadth of the things I like to write. Not a book that I’d seen before, but a collection of pieces, short stories, essays, poetry, lists, whatever I fancied and felt right to me. I’d never seen it but I could imagine it.

I even came up with a working title - 

“How to live well with incurable cancer without 

changing the world, starting a charity, or writing a book”


I began to write. 

A plan for what was to be included, then an essay here, a poem there, away I went.

I’m afraid that this isn’t a sales pitch, a pre-release plea. I stopped writing. I stopped writing long before there were enough things to make up a book. I didn’t look for a publisher. I had never planned to be self published, as that felt more than a bit self-indulgent.

Now, as my time on this planet grows increasingly limited, I’ll be putting those writings here, all those I’ve done, and as many as I can complete whilst wryly smiling and knowing that, according to my own terms, I have succeeded, and met my three "without" criterion.


Monday, 15 April 2019

Relationships

Firstly, please don’t think that this post is a ‘how to’ manual, or a way to fix anything that you might think is broken in your life. I shall tell you why.
I don’t understand attraction. 
I don’t get why some men make my stomach swim, and bring a throb as the blood rushes, tingling between my legs, and some (perfectly handsome and attractive men) do nothing at all for me. 
But I do know

Saturday, 23 February 2019

Awakening

What is it about the turning of the earth, of the new year and the coming in of spring? It feels both vital and ancient. Made new each time. I was glad my treatment ended with the spring. It made returning to the world that little bit easier. I’d expected that it would be easy, and natural, and great, coming back into the world, but actually

Friday, 1 February 2019

A new goal!


There’s something very wonderful about a meandering river, lazily making it’s way to the sea. It might get caught in gentle eddies, it will take as long as it takes. I can be jealous of this lethargy; so often it feel like there’s somewhere I have to get to, and I need to get there now. I wonder (when I get the time to think!) whether this is just who I am, or whether the twenty-first century instills this in me, through the expectation that we’re all doing everything, all the time. Do you feel like that? I think that 

Sunday, 30 December 2018

Buddies!


Hello there, and best wishes for the festive season, I hope you’re having a good time! I know I keep coming up with reasons excuses as to why there are such gaps between my writing at the moment, but it does feel that this is a good time to post this section of that time. I’m a lucky lady, I’ve got a good crowd of friends, and they are a crowd as well, they do different things in my life, there are those who I can have a great time with, those I can share fears and worries with, those who will help me out of a jam, when I inevitably get into one, those for